The quiet house has really helped me get better quickly. Trust me they are, but I worked it out. The first time I did it at 75mCi and the second time at 200mCi (lung nodules don't seem to uptake which is annoying, so we tried to hit them with a bunch). 2. Appreciate any help on this. But, after some bit of haggling I agreed to a small payment up front (really small - like less than a trip to Costco small) and to pay the balance after my insurance got done with the bill. 2) Got results July 26th and they showed nearly 3cm mass on ultrasound in right lobe of thyroid, all blood work was normal. The diet is annoying, but even with being ridiculously strict (pretty much only ate fruits, veggies and egg whites), its only for a short time and at least is a good diet. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. A randomized controlled trial was conducted. Just to briefly give my details again. neck pain 2 weeks post thyroidectomy - Thyroid cancer - Inspire An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. So, I turned to look at my partner and to make sure he was OK. I had some really entertaining PACU nurses who I conversed with for the better part of two hours until my room in the ICU was ready. 1. Hi, So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. After getting checked into the radiation isolation room #625, they brought me my dose of radiation 175 mCi of I-131 t1/2= 8 days. The Nutritionist who gives this seminar said she would check through my medical record to make sure my levels were normal and if she couldnt find all the blood tests she would order them so I could get my nutrition balanced. HHS Vulnerability Disclosure, Help 2 Mar 2011 1 year from being told I have cancer. Horner's syndrome may be unexpected complication after - Healio I had to make a decision. I've always had the pain when coughing hard. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Wish me luck. The ENT said I didn't need a biopsy because my nodule was so big and he recommended to just do a total thyroidectomy (TT). The type of pain that you will feel greatly depends on the kind of surgery you've had. In January I was beginning to have a hypersensitive gag reflex. Anyway, I was in a pretty good mood and was really pleased with how I generally felt and was ecstatic the surgery was over. I was also immediately able to have near full use of my voice, which told me that my larangeal nerves were ok - big relief. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. This morning he woke up and his neck on the opposite side was real swollen. The two most common early complications of thyroid surgery are hypocalcemia (20-30%) and recurrent laryngeal nerve injury (5-11%). I went to bed and slept until 445 am when I took some Tylenol and went back to sleep until 730am. Every now and then my salivary glands hurt a bit massaging them helps. It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. Again - very minor things that don't inhibit me from doing what needs to get done. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday September 13th I had my follow-up at Madigan for my ear surgery, I still have dizziness so they scheduled me for a follow-up hearing test as well as a CT scan and some Vestibular (Balance) training. Oh and the medical bills might be the end of us financially. Had a visit to ENT clinic at Madigan and then I did my pre-op for left ear surgery. While, thicker things like ice cream and yogurt move down more slowly. Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. Once again, have never had that problem nor do I know anyone personally who has any issue whatsoever. She was treated with 100 mCi of radioiodine-131 and currently has an excellent response to therapy. The major questions I waned answered were: how many thyroidectomies do you do a year and what is your complication rate? Jul 30, 2016 10:05 AM. I think my voice was the last thing to come back, but after 3 weeks that was fine as well. This is upsetting to me because everyone said I was safe to have normal contact with my kids at 7 days ( hospital said 2). Some people are put on T4 when they leave the hospital. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. Background: The surgical report says, The patient had a 5-cm incision created in line of relaxed skin tension. Most people start to feel recovered in 10 to 14 days. Also, they put on my legs those devices that squeeze your legs to prevent blood clots, they said they'd hook them up in the OR. After hours emergency: A/Professor Miller's mobile - emergency only please. Ask to be treated in the hospital for RAI to protect your family and the rest of the world. My body scan was interesting. Could be in the supermarket or at KFC, I have no idea. The surgery before me was running late and the clock just kept getting later and later. I'm still a horse. On the Aug 18 I had my 2nd Stapendectomy surgery with Dr C2. After surgery, you can expect some pain as your body heals. They say it looks bigger than it is because its inflamed from surgery and RAI it is 2x1x1 CM in both beds, cancer was only on right. If they kept me overnight, the plan had always been for him to go home for the night. That said, I was in very little discomfort and did not even feel that much of a sore throat. and his team (same group who did the right one). So, that worked out OK. I would characterize what I went through as "mild discomfort." I went home around noon the next day and the hour long drive home wasn't that bad. They said the scar from my thyroid surgery is mostly healed and looking good and that we can start planning the 2nd ear surgery. Next for me is probably clinical trials for this lung stuff + more lymph node removal down the line since those are growing back, but for 95% of you that's not something you'll be having to deal with:) But basically my point in all this is that it doesn't have to be as scary as it's sometimes made out to be. Mine is Synthroid and it really is noticeably better. There's just so many nerves and glands and other structures in your neck that you don't want to mess with, don't make the mistake of blindly putting your future in some random doctor's hands. I am not sure if TMJ or other dental problem vs the salivary glands. Exercise therapy for office workers with nonspecific neck pain: a systematic review. My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. Yeah! He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. TeamInspire I am not on the hormone replacement therapy pill yet and was told I will be given the radioactive iodine but I have no idea when!!?? On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. Simply put, for me, the only option was the traditional open neck procedure; but, I felt better knowing I'd exhausted that possibility. One more (indelicate) thing, take the stool softener they give you. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. After two weeks I just showered and shampooed normally. Bethesda, MD 20894, Web Policies 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. Vascular dilation on the other side of the face may or may not be present (Figure 1). Furthermore, last night, I was awoken at 3 am by pain in my neck. The aim of this study was to analyse the long-term musculoskeletal disorders in TC patients who had undergone thyroidectomy. I called the Mayo Clinic (all three branches MN, AZ and FL), the University at Loma Linda California, UC San Diego, UCLA, UC Irvine, The University of Miami, Baptist Hospital Miami, Jackson Memorial Hospital Miami, The Texas Institute of Thyroid and Para Thyroid Surgery (Dr. Kuppersmith) and am sure a few more that escape me right now. This is normal. Careers. So he sent me for Thyroid level tests and a Thyroid ultrasound. Clin Exp Otorhinolaryngol. In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. They gave me a pill and I drove to a cabin in the mts. An 84-year-old woman presented with chronic neck pain one year after thyroidectomy. A nurse came in shortly after that and I started an IV with a saline drip. So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). You might also have to take supplements after thyroidectomy to balance your calcium levels. 2010 Oct;(194):1-764. When I arrived on the first floor I was taken into the recovery room for pre-op. I'm dizzy like I'm drunk and nauseated. Accessibility Horners syndrome as described in this case report is a very rare complication after thyroidectomy with fewer than 35 cases reported in the literature, and most cases occur after surgery for malignant thyroid glands associated with lymph node dissection or with surgery for large goiters with retrosternal extension. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. National Library of Medicine On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. I hope this helps someone worried about what the surgery will be like. I'd had nine surgeries before my TT. What Causes Pain in Incision Months After Surgery? I had to drive to Denver three days in a row. 29th of July. Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. For this is a forever journey I am on! This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. undefined will no longer be visible to you including posts, replies, and photos. To analyze the effect of neck stretching exercises, following a total thyroidectomy, on reducing neck pain and disability. This was another full day at Madigan because it takes 4+ hours just to get through the line and get through the Pre Admission unit. It just takes the right approach. My blood pressure which normally is very normal (120 to 125 / 80 to 90) was spiking at that point at 160 over 105 and I know it was just anxiety and ativan would have helped. Also put me on the We fit balance game and I completed it on the 3rd try. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. Medicine (Baltimore). Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. Mentally I feel like I have cleared this massive hurdle. Dr H. thinks everything is looking good and she retires on the 19th of Aug. He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. First, let me say, I don't like iced water. i am at my wit's end with all of this pain after my thyroidectomy last I still have poor vocal range and intensity. I'm excited to BE that friend but as of right now I'm still in the middle- waiting for test results and piles of bills. Whiplash during automobile accidents is a common injury that causes neck pain. Once your thyroid is removed you are now . Answer: Skin laxity after thyroid surgery. It is found in the front lower part of your neck. Thyroid Surgery (Thyroidectomy): Prep and Recovery - Verywell Health Keep in mind that a good history and physical examination are beneficial for early diagnosis and education of the patient with this complication. I also felt extremely nauseous (although I did not vomit). On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours I met with two different surgeons. Chronic postoperative pain exists in varying degrees for every type of surgery. By 6:30 or so I was famished. I don't exactly have problem swallowing, but when I do, it feels as if some one is lightly-moderately pressing my neck. 4) They plan to suppress my TSH which will make me Hyperthyroid. Results. There they did a strep test (I'd had a sore throat off and on for a year) and a ct scan. The transfer team asked me to put the bair paws gown back on and I said no it was too hot. If anyone has / had the same issues, any info on them would be great. My surgeon kept telling me it's normal after the surgery, but won't give me detail explanation. I had quit my job to start graduate school last fall and then had to defer my graduate program to next year because I couldn't continue during the winter quarter. The week of the 20th to 25th I had my first run-through of TAP class, there is so much information they give you there I am so glad I can go again prior to retiring. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. Double check with your insurance even if your dr and hospital say you're covered. Early in August my kneed started acting up (been giving me pain for 7 years but I was told they couldnt do anything about it. I am hoping against hope that I can build my endurance with regular exercise. I also received some stitches on nerves inside. disability; neck pain; neck stretching exercises; thyroidectomy. It was pretty awful. However, since my surgery, I've been hit with insomnia. I've posted a few times since my thyroidectomy on 12JUN; but really wanted to give a more detailed account. Ask for the brand name thyroid drug. For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. Mind you, they were all very polite, but they were all very firm that they don't do robotic assisted surgery via the arm pit if it is either cancer or if the nodule is greater than 1cm; so I was two for two in not getting robotic assisted surgery as mine was both cancer and greater than 1cm. This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. While doing the setup for the Stapendectomy preparation Dr H. noticed I had a lump in my throat and sent me in for further testing. Stabbing neck pain!!! - Thyroid cancer - Inspire If I need to see someone in the Bremerton clinic for follow-ups it will probably be her replacement Capt C. Cupp (never met him). My wife was with me. He took a look at me, said everything looked great and that he was writing a discharge order for me. It has become shrill and high-pitched. I just started going back to work this week. Federal government websites often end in .gov or .mil. For now though they cant give me any anti inflammatory meds because I am too close to surgery and I cant take anti inflammatory meds prior to surgery. Source: Images courtesy of Stephanie L. Lee, MD, PhD, ECNU. The patient underwent total thyroidectomy with central and left lateral neck dissection. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. Thyroid function labs were all within normal range. God, family, friends and prayer are what got me through these last 7 months with thyroid cancer. The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. As days pass, I feel that this might not be a good decision. Now I am two months post thyroidectomy (and 1.5 weeks pre-RAI) and I am experiencing throbbing, stabbing (on and off for the past few hours) ear pain in my right ear. Just allow some water to run over the incision site and cleanse it. She also told me that if I need another surgery to fix the problem that there is a 10% chance I will lose all hearing in that ear, and being that it is my better ear I seriously hope I dont need to get surgery. And yes, after I got out of the hospital and all the heavy-duty painkillers wore off, I had terribly sharp, stabbing pain in my neck. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). Hi! 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. Then, they hit me with propofol and the lights went out. Besides a surgical scar in her neck, a physical exam was notable for left upper lid ptosis and anisocoria with the left pupil having a smaller diameter than the right (Figure 1, lower panel). Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. Epub 2022 May 30. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. She kind of blew me off although she did do a thyroid TSH test and it was "normal". Bookshelf People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. After about a week or so, the pain was intermittent. Swallowing discomfort. FOIA Patients who undergo thyroid surgery frequently suffer from unpleasant symptoms such as a stretching, choking, or pressing feeling or discomfort in the neck for a long time. Once there I registered and was sent to the 11th floor where I was placed in a nice looking hospital room. On Friday the 8th of October I will have the stitches removed from my eyebrow everything looking good. Within half an hour I was being wheeled to the elevator to head down to the first floor. When I first started this journey I read that thyroid cancer is a good cancer to have and I told my family this to ease their fears (and mine). Thyroid Surgery Recovery, Side Effects, and Complications - Verywell Health 2022 Sep;46(9):2212-2222. doi: 10.1007/s00268-022-06610-0. It has been beyond informative and makes a huge difference knowing there are people out there that understand. I felt bad the first two days but that was it. They brought him back to see me in pre-op again. I also never took any narcotic pain killers after surgery. I was there a short time where I met briefly with a surgical nurse, my anesthesiologist, and my surgeon. July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. Nothing like feeling normal. I called the office to verify that was correct and was told it was. Do they usually biopsy Lymphnodes during TT? I have had unexplained "symptoms" including but not limited to: chronic sinus infections, severe neck pain with left arm numbness and tingling, severe "random" aches, pains and stiffness, chronic "IBS," chronic flu like symptoms; chills and nausea, constant lethargy and sleepiness, chronic diarrhea, rapid irregular heart beat and my weight went from 128 to 116 in the last two months. Would really love some advice on how to proceed about improving my breathing. My Endo says I still "have" cancer (I wanted to clarify) not sure when that Dx will go away but I've read 5 years (is this true?). Stay alone in a separate house if you are able for RAI(it really is hard to keep your distance). There is all kinds of chaos going on around the ICU as well, which is understandable since many of the patients in that unit are in extremely poor health and have important needs. Suffice to say, I was very disoriented for about the next 10 minutes. PDF Annals of Pain Medicine Case Report - remedypublications.com I only lost 2 lbs on the diet and basically ate rice cakes and carrots for 4 weeks. Some of it was while I was still sore and using pain meds. She did not develop other complications of thyroidectomy, such as bleeding, wound infection, vocal cord palsy or hypoparathyroidism. Stretching exercises to reduce symptoms of postoperative neck - PubMed These symptoms may persist for long . Both doctors answered every question openly and forthright. It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). That's a nice way of saying they put it in a neck wrinkle. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. Although, I have a lot of support from my family and friends, I am struggling with inexplicable sadness. The combination with of nortriptyline 10 mg per day and . I am from USA but in the Philippines, and I went full Vegan after all of this. They want me < .1. And yes, I know it could have been worse. When I tilt my face upward and try to swallow, this discomfort is magnified. Argue with people or agree with people, agree to disagree if that's what it takes to get you through this. I had to cave in and take one of my remaining pain meds. The reasons for that are in this post https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/its-100-for-sure-cancer-pathology-report-back/ The best reason I can come up with is that water and juice rush down the throat hitting the sore spot quickly. Parathyroidectomy - Mayo Clinic My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. Would you like email updates of new search results? On the 16th of September I star my physical therapy, I have defiantly noticed that during and for the next few hours after physical therapy my knees hurt a lot more as expected for the next 4 or so days the pain is greatly reduced and I can walk better. The cancer had spread to my vocal cords and had to be scratched off them and some other nerves. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. 2. Tightness, fullness, painful neck post Thyroidectomy I am defiantly feeling much more mentally stable after I was put on Synthroid. Can it grow that fast from elevated TSH levels? The Impact of Post-Thyroidectomy Neck Stretching Exercises on Neck Discomfort, Pressure Symptoms, Voice and Quality of Life: A Randomized Controlled Trial. Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. 7 weeks after TT and like 2 weeks after RAI. I was sent to the ICU (I knew I would be going there) because the surgeon wanted me to have better nurse ratios overnight. Has anyone struggled with breathing issues post TT? My surgeon wouldn't commit to either putting in or not putting in a JP drain prior to surgery, but he did say he doesn't use them as often as other surgeons. Find other members in this community to connect with. Second time with the larger dose was a little worse, but nothing terrible. I used regular tylenol only immediately following surgery and upon returning home. If I hadn't known about 7 other women who had all gone through total thyroidectomies and RAI with absolutely no lingering symptoms, I would have been freaking out prior to my surgery. A full Thyroidectomy was done 6 days ago. Everyone was extremely professional, everyone was very nice. That said I had this horrible monkey on my back for weeks and I really couldn't shake it. I got into bed and took a 3 hour nap, which was pretty glorious. This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/
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